| Mindy Lewis spent her sixteenth
birthday--it wasn't so sweet--in a world-famous mental hospital
in her native New York City. She spent her seventeenth and eighteenth
ones in the same airless institution, drugged and locked away from
sunshine and movies and pizza. Then she was spat out into a world
where her agemates, buoyed by the support of their largely loving
families, had gone off to the colleges of their dreams.
It's one thing--a terrible thing--to grow up in a troubled household
and have to struggle to forge healthy patterns of living on your
own when you were not intimately exposed to any during childhood.
It's an entirely different thing not only to grow up in a troubled
household but, in what should be your most exuberantly experimental
years, have the full weight of the medical establishment stamp its
worst verdict on you and pronounce you schizophrenic.
"As a teenager I cultivated confusion," Lewis now says. It was
the best way she could find at the time of keeping some distance
between her and her overly dependent and intrusive mother.
"My mother was a single mother, a hysterical person. I had to pull
away from her. We were locked together in unhappiness. I had tremendous
guilt. I felt I was constantly disappointing her. I was a truant.
I would go to Central Park to be in nature, and I would paint there.
I was trying to find my own way and it was misinterpreted." Unable
to handle the rebelliousness, her mother had her declared a ward
of the court--and remanded for care.
Today Lewis is by any account a healthy and creative adult with
extraordinary insight. She is an artist by profession, a dancer
by avocation and a writer by sheer force of will. She is the author
of Life Inside: A Memoir (Atria Books), which chronicles her extraordinary
odyssey from troubled teen robbed of that most normalizing of experiences,
high school, to wise and compassionate adult.
She has learned "the healing power of awareness, of seeing other
points of view. There is so much richness, so much intensity under
the grief of those years [of forced hospitalization]."
How did she overcome that brutal experience? "I don't accept the
psychiatric worldview as a way to look at all human problems," she
explains quietly. Imagine the bravery and the belief in self that
one must develop in order to reject the opinions of medical experts.
"The medical model is just one way of looking at people," and an
increasingly pathologizing way of looking. "The norm is getting
tighter and tighter because we are so productivity-oriented," says
Lewis. "Human behavior is much more varied and individualistic than
the psychiatric model allows. There are, of course, extreme cases
of chemical disorder in people. But the concept of disorder is being
extended to a larger and more generic group of symptoms."
Psychiatry is passive, she says. "You swallow pills. That doesn't
give you lots of tools for living. Instead, I sought mastery."
Lewis struggles with depression but refuses to take drugs. "I prefer
my own chemistry to artificial chemistry," she explains quietly,
noting that she regards taking drugs as a personal defeat. "Medication
means I am estranged from myself." What's more, she is highly sensitive
to drugs, so she feels she had to develop alternate routes of solving
her problems. She also believes that there are times when depression
is appropriate. "It often holds a lesson to be learned about something.
It's not just a matter of a chemical process."
For decades, Lewis carried and internally battled shame from the
diagnosis of mental illness and her three years of hospitalization.
There is a part of her that always thought she was unjustly incarcerated.
And another that thought, "Oh my God, the doctors were right, there
really is something wrong with me." It kicks in anytime something
goes wrong in her life.
But she knows "I am OK, not ill." She has found "ways of working
with my moods and thoughts. I need lots of exercise. I dance; I
study belly-dancing and I love it. I also need interaction. I have
learned to articulate what I need. I have learned how to deal with
anger. I have learned to develop healthy relationships." She has
learned the art of self-governance, the one we all spend a lifetime
learning.
Refined and urbane, Lewis nevertheless feels embarrassed that she
never got a formal college education--she had to struggle merely
to survive the stigma after being released from the hospital. Instead,
she has turned her whole life into an education. About herself.
About what happened to her. About what happened to the other kids
who were hospitalized with her. About psychiatry. About creativity
and self-expression.
And, most remarkable of all, even about the doctors who were in
charge of the psychiatric wards or who passed through them rendering
diagnoses and writing prescriptions in the course of their own clinical
training. In what turned into a feat of compassion, Lewis went back
through the hospital records, noted all the doctors' names, tracked
them all down and interviewed them for her book. She wanted to know
not only how she came to be mislabeled schizophrenic but how they
fared as a result.
She holds no anger toward them. She has come to see that, at the
time, they were young men (mostly) still very uncertain of their
knowledge in a specialty that itself is uncertain of the nature
of human nature.
In what is surely the most bittersweet form of vindication, Lewis
now educates psychiatrists about the disorders they are called on
to diagnose and treat. The day before I interviewed her she had
addressed an auditorium full of physicians at a psychiatric Grand
Rounds.
She told them about her hospitalization. She talked about the other
kids. She is not without humor. She remembered how they were an
intellectually curious and hormonal bunch who spent a disproportionate
amount of time doing what kids on the outside were doing--feeling
each other up when their guardians were looking the other way. She
also told the doctors that most of the other kids had died somewhere
along the way, by their own hand.
Mindy Lewis was determined to be a survivor. Mostly on her own,
she developed enviable resources of body, mind and spirit. She had
the courage to look inside and love herself. She is the very personification
of resilience. It should come as no surprise, then, to learn that
she did one more extraordinary thing. She found the strength to
forgive her mother for having her locked up during those very vital
years. |